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Welcome to the IDD Parent Advocacy Study at UNC-Chapel Hill

“The whole transition process that we’re taught as parents — on paper sounds great, but then, when you get to do it — you’re on your own.” – Parent

Now Recruiting

Help us find the best way to build advocacy skills for parents of youth with intellectual and developmental disabilities (IDD).

Learn More About Recruitment
Beth and Jason Prichard with their son outside.

Quick Facts

Icon representing participants with text that reads "297 parents/caregivers joined" and a loading icon with text that reads "36 parent groups complete/underway."
Kate shows Avery something on her computer in an office.

Project coordinators Avery and Kate work together at the Carolina Institute for Developmental Disabilities to recruit families.

Andi and Avery stand outside in front of the Carolina Institute for Developmental Disabilities sign.

Project coordinators Andi and Avery stand outside one of our partner clinics, the Carolina Institute for Developmental Disabilities.

Old Well logo for UNC-Chapel Hill

This study is funded by the Patient-Centered Outcomes Research Institute (PCORI) and is based at the University of North Carolina at Chapel Hill's Eshelman School of Pharmacy.

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